Herbert
was one of the first clients referred to the Bunurong Respite Program, formerly
the Casey and Cardinia Respite Program, when it started in 1995.
New to the disability field, I went out to meet both Herbert and Traude and
discuss how the respite program might be able to help. Herbert was not particularly
interested in what I had to say, instead playing his rock music in his bedroom
and exploring things around the house. I could quickly see what fulltime support
he required and how desperately Traude needed more help. We set up a Care Plan
providing two respite outings per month for Herbert with Nicole, a personal
carer from Wresacare. Herbert enjoyed visits to the city, movies and shopping,
avoiding places where there were crowds. He really enjoyed the train trips and
established a good relationship with his worker.
Traude was fortunate enough to meet Kath Vogel, another mother of a disabled
son about the same age as Herbert, at our Carer’s Day function in 1996.
Kath knew how to ‘work the system’ and after listening to Traude’s
concerns about her caring role and need for more help, advised her to contact
her local politicians.
After her meeting with Kath, Traude began to get political, and with support
letters from agencies who knew Herbert, she started to write to politicians
about her need for permanent placement for Herbert. In late 1997 Traude wrote
to the then Premier Mr. Jeff Kennett and within a few months a permanent place
was found for Herbert at Moorabbin where he lived prior to moving permanently
to his new home, Paperbark House in Doveton.
Traude’s story is one of devotion and dedication to caring for her son
and taking on the might of bureaucracy to secure a permanent place for him when
she knew she could no longer continue to provide that care full-time at home.
The placement at Paperbark House was to mark the start of a new era for Herbert
and he settled very happily into life in Doveton. Traude and her family were
then able to enjoy the times that Herbert spent at home with them and Traude’s
health improved significantly. Sadly, Herbert passed away early in 2001 but
his time at Doveton marked a very happy period of his life.
Traude has been a consumer representative on the Bunurong Respite Care Steering
Committee since February 1998, replacing Kath Vogel after her untimely death
from cancer. Traude’s contribution to the committee is highly valued as
it keeps us well in touch with carers’ issues. The committee is very impressed
by Traude’s decision to record her story and wishes her well in this venture.
Foreward
Margaret Edwards
Coordinator, Bunurong Respite Care-Program